Personalized medicine requires a database of genetic information from patients afflicted with various diseases; this database is then referenced to treat patients suffering from similar diseases who also have a similar genetic makeup.
Various parties are vying for leadership roles in personalized medicine, but progress has been slower than the recent advances in technology. The only way personalized medicine will move forward is if there is cooperation and collaboration, dare we even say unity, between medicine’s diverse groups.
Delving into the DNA and discovering which medication or treatment would be most beneficial to the patient will assist physicians to avoid expensive-but-less-effective alternatives. And patients, their insurers or the government will avoid having to pay a lot of money for medications or treatments that might not prove helpful. Money and time will be saved and lives extended through more consistently efficient and effective treatment.
An obstacle that personalized medicine has faced is the lack of standardization in genetic testing. There isn’t a definitive method by which patients are tested and results evaluated, so data cannot be given an apples-to-apples comparison. Without conclusive standards or protocols, patients and physicians seeking personalized remedies are left without a clear treatment path. MED-C aims to move forward with a single, industry-accepted testing and reporting standard.
As a non-profit organization, MED-C will strive to bring together all of the health community’s key stakeholders through our sharing and collaborating of aggregated next-generation sequencing genomic data. That data will not be held hostage to profit. It will be widely accessible, available to most for low cost and for no cost to academic researchers.
Diseases are like fingerprints: They are unique and affect each individual differently. They require specialized treatment. Gathering data about illnesses and how they affect various genes can give physicians insight on how to best treat patients with genetic makeup similar to previous patients. Personalized medicine will help take some of the guesswork out of medicine.
HIPAA laws require confidentiality and protection of medical records and other personal health information. MED-C complies with all HIPAA requirements and industry standards in our database and in the information collected from patients and physicians. Patient security is of highest priority to MED-C.